Wednesday, March 30, 2011

"Silly Arm Night"




If you couldn't tell by the title and pictures, it was "Silly Arm Night" at AWANA last night. K started out by putting them on one at a time... then I just grabbed sheets of tattos and put them on 7-8 at a time. I think that is the mom v. dad (or woman v. man?) way of doing things... Just GET. IT. DONE. ;)


ZuZu needed a couple tattoos as well:


I finally got him to stand still so we could see the arms:



Such skinny little arms! Can't wait to see a little more meat on those arms when he starts eating some more! Still can't figure out how he is in the 90th percentile for weight and height, while ZuZu is so tiny. She will eat ANYTHING. The other day we caught her dipping her banana in mustard. GROSS.

Tuesday, March 29, 2011

Progress.

When I was in high school, my family started babysitting for a little baby named Megan; she was the most beautiful baby I had ever seen, and she quickly became my "little sister." I did all those sisterly things, like teaching her how to mosh (ah, those were the days!). I will always remember sitting in the back seat of our car when she was about 4 years old. I was probably a senior in high school or freshman in college. She turned to me out of the blue and said:
Mailee- what is "progress"?


Uhhhhhh.... I couldn't explain it. What a little smarty pants! That conversation came to mind tonight all these years later, as I sat watching my four-year-old (almost five!) eating cornbread. That's right. He was EATING CORNBREAD! THAT is "progress." In fact, he's done some pretty amazing things in the last few days. After an urgent care nurse diagnosed bronchitis on Saturday, he was given a prescription for a antibiotic in pill form. She thought we could crush it up and slip it in ice cream. I appreciated that she listened to me when I explained that Moses DOES NOT take medicine, but I could tell she thought I was just being a wimpy parent. So I kinda wanted to punch her.... But ANYWAY. You can't sneak things like that past a child with sensory issues. It's like the princess and the pea. It doesn't matter how minute the amount of medicine, he can taste it, and it tastes more extreme to him than it does to us. I was SO proud of him. He tried to take the pill three different ways: crushed in pudding, whole with milk, and crushed in milk with sugar. He tried so hard, but he just couldn't do it. He cried, "It BURNS!" The fact that he tried WILLINGLY is HUGE progress. Thankfully, we have a physician assistant in the family. She called in a different prescription that night for a liquid that tastes MUCH better. Now, he has NEVER willingly taken a liquid medicine. But we built it up for several hours, telling him how much better it was going to taste than the crushed pill. And for the first time in his life, he TOOK MEDICINE. He said, "I wanted to cry, but I didn't!" AH! Break my heart! He's taken it willingly now three days in a row. What a trooper! In the last couple of days, he has also put a green bean in his mouth (and spit it out), and taken a bite of grilled cheese (and spit it out). We will work up to chewing! I am SO PROUD of him. It is so good to see "progress." Praying that this opens a new world for him! (PS- totally annoyed that blogger isn't putting any of my paragraph breaks in... GRRR! Is there a trick to that or something?!)

Saturday, March 26, 2011

Fun Friday: A little of this and that...

It was a low-key Fun Friday, but it seems like the low-key Fridays always end up the most successful. It started with a surprise for Moses after school; we are taking him to Winter Jam next week to see Newsboys (he doesn't know it yet), so we had the new Newboys cd playing when he got home.

We then decorated a small Easter tree for our dining room.

We had breakfast for supper, and the feeding therapy went much better than it had at lunch. Instead of having to coax him to try things (the theory is you start small and work up, so you start by having him touch the food; then he has to pick it up; then he has to touch it to his face; etc.), he kept asking "what next?" We had biscuits and gravy, and we were able to work up to him dipping biscuit in gravy (not eating it), and touching a plain biscuit to his face. It's a good start! He's actually starting ahead of a lot of kids with similar issues, because he can tolerate having the food in front of him.

After supper, he and I made pumpkin bread together (again, prepping food is part of the process- and one of the few random things he will eat). He was a CHATTERBOX. And then he started asking me questions about supper: Did I make you proud? Did I make you proud, or really proud? (REALLY proud, Moses!). He stirred the bread mix, didn't mind if it got on his fingers, and even licked it off his hand!



While the bread was baking, we played a family game of hide-and-seek. I don't think any of us had laughed that hard in a LONG time. It felt good!

But the bread took forever for some reason tonight, I rushed getting it out of the loaf pan and it didn't come out well, and it was still hot when I served it to Moses. Not pleasant for a little guy with food sensory issues.... he said forlornly as he picked at his hot pumpkin bread, "This does not make me happy." Ah, that just cuts right to the heart! On the flip side, it is so good to hear him actually expressing himself about what he is eating, instead of just withdrawing inside himself.

Oh my goodness, I LOVE him.

Two random notes:

1) ZuZu clearly does NOT get the concept of hide-and-seek.

2) Hosanna clearly does NOT like being put in Moses' Easter bucket:


:)

Friday, March 25, 2011

A couple more things...

Since I know there are some people reading the blog who I have never met in person, I wanted to mention a couple other things. Moses is the most loving, fun little kid you could meet. His therapists are pretty much in love with him, and Ithink they would keep him around all day to play if they could. They have also emphasized how advanced he is academically; so I remind myself of these things when I can't get him to eat a cracker!

Feeding Therapy, Day 1: This is not going to be easy

This is a blog post that I feel I need to write for myself; I need to get a few things out. I'm guessing few people will read it in its entirety; and I may even decide to take it down 2 hours after I put it up. But we'll see...

I will start with some background. Three years ago, we started to see a change in Moses' eating patterns. He was two, and he started rejecting certain foods that he had liked in the past. We talked to our family doctor and the pediatrician, both of whom told us not to worry about it and that it was a phase toddlers go through. They said that about the time he turned three, he would start expanding his foods again.

I also noticed other quirks. He seemed to have this extra-sensory perception that I couldn't quite figure out. Example: he liked one particular brand of chicken corn dog. It smelled and looked exactly like any other corn dog. But I could put a different corn dog down on his plate, and he wouldn't even touch it. The next day, I could put a chicken corn dog on his plate, and he would eat it. How did he know the one was an impostor, without even picking it up? But he knew.

So....He turned three, and he ate fewer foods.

He turned four, and he ate even fewer foods.

As of last fall, he would eat Banquet chicken tenders, raw vegetables, apples, bananas, grapes, peanut butter sandwiches, peanut butter on crackers, fish sticks, and sometimes pizza. But it had to be a certain brand of frozen pizza, and even then it was sketchy whether or not he would eat it.

Today, he no longer eats Banquet chicken tenders, fish sticks, pizza, or peanut butter sandwiches. He eats peanut butter crackers, raw vegetables, and fruit. (He also likes cookies, cake, etc., of course).

In the meantime, there was a person in his life that had been very much like a grandfather to him. We did not know it (we have only been in this community for 4 years), but this person is elderly and has a history of turning on people and becoming hostile toward them. He turned on Moses, directing hostility toward him (by shunning him completely). As an adult, I understand that people are fallen and, honestly, I have learned to pity this man. He is clearly miserable in his own life. But Moses doesn't understand. He developed signs of anxiety, his eating dropped off even more, and we got him in to see an incredible Christian counselor in the Peoria area. She said we needed to get him out of here. She also picked up on what I had been suspecting: Moses has some sensory issues (feeding and auditory).

At her suggestion, we were able to get Moses in to see an occupational therapist specializing in food issues. She has been observing Moses and consulting with us, and today we began implementing a food therapy plan. She also suggested that we get closer to a larger city, where Moses would benefit from music/art therapy to help him overcome some of his fears.

Yesterday she kept emphasizing, "This is going to be a long haul." As I sat at the table today trying to coax Moses to eat peanut butter crackers (something he used to eat willingly), it all began sinking in. When I look at his finger nails and realize that they are starting to get ridges because he isn't getting enough vitamins, I start to panic. So today I did something I thought I would never do to my child: I lied and used fear. I showed him a picture of a 5-year-old boy in a hospital hooked up to all sorts of wires. It was actually a boy injured in Libya, but I discussed with Moses that we are trying to work with him to help him see that there are more foods out there that he might like; but that if he doesn't let us help him, he will get sick and end up in a hospital. I told him that the little boy was sick because he hadn't been eating enough good foods.

Definitely not a parental high point. But he did start eating.

So, this is one of the reasons we know it is time to move. At the suggestion of the occupational therapist, we need to get him into a school district more equipped for special needs children (I have a hard time typing that), with half-day kindergarten, closer to the amenities he needs. We need to get him into a church setting with more kids and more music (his occupational therapist has picked up on the fact that he really expresses himself through music and art).

We've known for a year that we needed to do something for Moses, and suspected that moving was the best option. At least now we have a plan. And we are praying that God puts the pieces together quickly so that we can have a healthy little boy once again!

Wednesday, March 23, 2011

Just to clear up some confusion...

No, we don't actually know where we are moving yet! :)

But we have been patiently getting our house ready over the course of the last year, for what we knew was an inevitable move. I won't go into all of the "signs" here, but we know that now is the right time to get the house on the market. Our goal is to be wherever it is that God leads by the time Moses starts kindergarten in the fall.

We are trusting that God is going to fulfill the timeline He seems to have set before us, to whatever location He has for us!

Tuesday, March 22, 2011

Buy me! Buy me!

Hey local friends- if you know of anyone looking for a house, we are ready to sell! LARGE, 4-bedroom, updated 100-year old home with newer windows, brand new insulation, finished attic space for a total of FIVE WALK-IN closets, original (beautiful!) woodwork and built-ins, dry full basement... really, you have to see it to believe it! (Do I sound like a realtor? :) ).

If we weren't planning on moving out of town, I would never want to sell this house. We have SO MUCH space.

Exterior:


Very long side yard great for playing catch or soccer!


Screened-in back porch:





Double garage with workspace and separate electric:


Large living room with wood-burning fireplace (however, we have never used it):


Living room opens into dining room:


Large dining area with built-in window seat/drawers:


Built-in floor-to-ceiling bookcase in dining room:

Eat-in kitchen with tons of cabinet space (cabinets over kitchen cart not pictured):





Large master bedroom (next 3 pictures):






3/4 bathroom off master:
Bedroom #2 (main level)




Bedroom #3 (main level)




Bedroom #4 (upper level)


Main floor bathroom:


Whirpool jets:
Contact Almeda at Sutlive Real Estate if you would like to see it in person!

Sunday, March 20, 2011

"Do I get a Piston Cup?"

That was Moses question when he saw the trophies at the AWANA grand prix today- and oh my goodness, I don't think I am going to make it as a parent. The intensity of competition... yikes. Can't everyone win? :)

But.... he DID win! He won all four of his races and earned first place!


I was SO proud of him. Not because he won, but... well, wait. I was proud if him because he won. Very proud. But that wasn't the only reason I was proud. I was proud of his attitude. He was cheering all of the kids along, and he didn't even notice those trophies until all of his races were over. And I was proud because he had worked so very hard on his car.

He helped PaPa with the dremel (for shaping the car):

He toughed it out through the loud noise (a HUGE deal for a kid with auditory sensory issues!) and blew away the saw dust:

He painted it (but I don't have any pictures of that, because I was the one helping him, and we did it on nights when K was at work).

He used the drill to sand the axles:


And he tapped the axles/wheels into place:


The first of the four races was against his best friend- UGH. I was hoping they wouldn't have to race each other!

We didn't get great pictures of the first two races- those cars go so fast, and if you aren't in the right place, you miss it. I have a few pictures of empty track. :)

But we got the third race:

We didn't realize this (below) was the race for First and Second until after it was over. The Mario car had been daunting everyone- it seriously flew down the track. Somehow we snapped this right as Lightning McQueen was catching up to take the lead!

From where I was, I couldn't even tell who won. K got a great flip video of me saying "Did he win?!"

I love this picture, because he doesn't even know his "Piston Cup" is coming...

He also ended up getting a trophy for "People's Choice"- people voted with pennies for their favorite car. He went to sleep with both of his "Piston Cups" last night. :)

Happy SPRING!




We have a big day today-it's the AWANA Grand Prix! Pics to be posted later!

Friday, March 18, 2011

Fun Friday: Treasure Hunt

Tonight we did a treasure hunt around the house for a small treasure. The kids were running all over the house, up and down the stairs, to places like...

Mommy's desk...


The Roadrunner/Looney Tunes DVD case (the clue was "meep! meep!")...


ZuZu's kitchen...


"Look ZuZu, the treasure!"


He was one happy guy- makes up for the mopey picture up above!

Wednesday, March 16, 2011

Cover Baby




Yep, that's one of my children gracing the cover of DL this year (and currently the website). Proud momma right here!

Tuesday, March 15, 2011

Betty Crocker

I would be the first to tell you that I don't have many kitchen skills. That gene seemed to skip me.... Okay, maybe it stopped with my mom. Because I don't think ZuZu got the cooking gene either... But I can guarantee you that she did not learn any of this from me...

I promise I never sit in the fruit basket while stocking my refrigerator with pots and pans.


I promise that I never throw perfectly good cookies in the sink.


I promise that I don't make fruit salad in a bilibo.



And I promise... what, what is that?


Oh, yes. And I promise I do not bake monkeys in my oven.


I also don't bake children.


Man, I love her!


In other news, it was a big day at Pre-K today. Because Moses' class had earned 10 class stickers (meaning there have been 10 days when all 9 kids have gotten green/good stickers at the end of the morning), they had a party today as a reward.... a pajama party!


We were up late again continuing to work on the house last night. Okay, correction. K was up late working on the house. I was "keeping him company" and blogging. :)